Blog

Monocular Telescopes: The Little Gadget That Could—But Should It?

When addressing visual impairments in individuals with albinism, particularly in children, monocular telescopes often come up as a recommended aid. Picture this: a child with albinism in class, squinting at the board like they're trying to decode an ancient...

The Silent Threat of Skin Cancer in Albinism.

Imagine spending every day under the blazing sun, with no shade, sunscreen, or protective clothing. For many people with albinism in coastal regions like Kilifi, this is an everyday reality. The sun, which most people rely on for warmth and energy, becomes a...

What’s Your Color? Let’s Talk Pigment!

Let’s kick things off with a quick question: What’s your color? Are you black? White? Brown? Or maybe a little chocolatey? No, I’m not asking for your coffee order. I’m talking about skin tones, the stuff that gets everyone wrapped up in categories like black, white,...

The Revelation- My Journey To albinism advocacy

"Sherleen, You Have Albinism" It took me twenty-five years to utter those words to myself, a profound realization that came after a poignant phone conversation with Ducton, my elder brother. His gentle reminder unlocked memories I had subconsciously barricaded, a...

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